Lifeline for ME Families

Reading Chronicle 10th July 2008

A group to help parents of children with ME in Berkshire has met for the first time.

Reading Area ME Support Group is currently creating a network aimed specifically at supporting parents of children with ME.

Group spokeswoman Miriam Potter said: “When children are diagnosed with ME, and often long before the diagnosis, parents feel a sense of desperation, isolation and helplessness.

“They can find themselves confronted with conflicting information and confusing internet research trying to make sense of an illness that few people really understand. Often they find themselves in turmoil not really knowing what to do for their child.

“We linked together a group of parents and have started to make plans to create our own network aimed at supporting parents to enable them in turn to help their children.”

A group of six parents met for the first time in Reading at the end of June to exchange stories and offer practical advice and support.

The next meeting is planned for September, and anyone with an interest can contact: Brenda.


In Brief

MP to meet patient group

Members of the Reading Area ME Group are meeting frontbench Tory MP Theresa May tomorrow (Friday).

The shadow leader of the House of Commons and Maidenhead MP will listen to the group’s concerns over services for ME sufferers in Berkshire at Twyford’s St Mary’s Church Hall, Station Road, from 11am-12.30pm.

Miriam